Being active has always been a large part of Ben's life. He played volleyball multiple times a week in the park, coached youth sports (Optimist Football and both girls' and boys' volleyball), sang music, and participated in the many activities our children were part of. Losing the ability to participate as an individual first and… Continue reading 12 Days of Christmas for Ben: DAY 5
12 Days of Christmas for Ben: DAY 4
Someone once said, "Where words fail, music speaks", and in our home that couldn't be truer. This morning on our way to cheer practice before school, the girls and I were listening to Dear Evan Hansen's, "You Will Be Found." Needless to say, we hugged a little longer before they got out of the car.… Continue reading 12 Days of Christmas for Ben: DAY 4
12 Days of Christmas for Ben: DAY 3
Last year, we received an AMAZING gift with the remodel of our home. There isn't one day that goes by that we are not grateful for the accessibility of the space. This is even more apparent now that Ben needs additional equipment like a Hoyer Lift. The size of this gift and the outpouring of… Continue reading 12 Days of Christmas for Ben: DAY 3
12 Days of Christmas for Ben: Day 2
Day 1 was a HUGE success, and I just can't thank you enough for the nearly 80 texts that Ben received yesterday from so many. He was floored by the love and laughter sent his way. It was amazing! Today's challenge is one that is near and dear to both of our hearts, and it… Continue reading 12 Days of Christmas for Ben: Day 2
12 Days of Christmas: DAY 1
Oh boy oh boy! Day 1 is officially here, and I am so excited. He cried when he read my initial post last night, overwhelmed by how lucky he is to have so many people who want to shower him with love. His phone has become a lifeline to the outside world so be sure… Continue reading 12 Days of Christmas: DAY 1
12 Days of Christmas for Ben
This idea has been brewing for a bit and I am so excited to finally pull the trigger on my Christmas gift to Ben. And I need your help! The 12 Days of Christmas countdown starts tomorrow (Monday, 12/13/2021)! If you follow our blog or social media or are friends with us in real life,… Continue reading 12 Days of Christmas for Ben
Fighting and Submission
For two years, we have fought. Fought for a diagnosis. Fought for a cure. Fought for mobility and access. Fought for answers. Fought for faith. Fought for more time. Fought against pain, decline, and frustration. Fought...fought...fought. We are tired. A week ago, I shared a photo of Ben on my social media that celebrated one… Continue reading Fighting and Submission
Our Neverending Story
When I was a young man, one of my favorite movies was The Neverending Story. The film follows a boy who finds a magical book about a young warrior who is given the task of stopping the Nothing, a dark force, from engulfing the world of Fantasia. Along the way, the boy encounters several interesting… Continue reading Our Neverending Story
Lumps, bumps, and a broken butt?
Oh man what a week. Can I just tell you I've never been more happy to see Friday night than I was this past week. Let me back it up a little and fill you in on a few details. You might want to get something to snack on...this might take a bit. Let me… Continue reading Lumps, bumps, and a broken butt?
Sending Love to Texas
Nothing compares to having a good friend. Life on this teeter-totter just wouldn't be the same. They pick you up when you are low and sometimes you get to experience the joys of bringing them up, too. It takes a special kind of friend to jump into our pool and not be overwhelmed by the… Continue reading Sending Love to Texas
Welcome to Grin & Barrus 