Dear Friends and Family: I recently read a quote that said, “hope is the only thing stronger than fear”. I have written and re-written this blog post atleast a dozen times. There are a lot of reasons why. But the truth is that it is a hard post to write. There have been many times… Continue reading Hope is the only thing…
Category: Muscular Dystrophy
Boden Update — SLC Primary Children’s Trip 1
4am on Tuesday morning Boden and I hit the road. Our appointment was scheduled for 6 hours later in Salt Lake. I don't think I slept the night before -- I was worried I'd miss my alarm and I was excruciatingly nervous about the outcome of the appointment with Dr. Butterfield that we had waited… Continue reading Boden Update — SLC Primary Children’s Trip 1
DIY Ice Packs
We have a herd of athletes in our house and there are three things we run out of on a regular basis -- food (teenagers eat...a LOT), Deep Blue rub, and ice packs. Throw in a mom with a bum back, a kiddo with some muscle issues, and a very active herd of little kids… Continue reading DIY Ice Packs
You Are Wonderfully Made
It's after midnight and I just finished having a tender heart-to-heart with my 13 year old. It's not the kind I expected to be having -- we didn't talk about girls or music or baseball like we normally do. Instead, we talked about pain tolerance, life insurance, and muscle biopsies. We both cried a little… Continue reading You Are Wonderfully Made
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