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Welcome to Grin & Barrus

Welcome to Grin & Barrus

You Call It Chaos, We Call It Family

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Category: ALS

ALS · Big Daddy

Layers and Tender Mercies

October 22, 2020October 22, 2020 mom2manyboysLeave a comment

One of the (many) challenges with Ben's disease progression has been some of the symptoms he experiences that don't fit in to a specific neurological disease diagnosis. Our primary care doctor once summed it up by explaining that doctor's often make a diagnosis from a checklist of symptoms and if those symptoms deviate or don't… Continue reading Layers and Tender Mercies

ALS · Big Daddy · Faith · Family

Bit by Bit

September 22, 2020September 22, 2020 mom2manyboysLeave a comment

We do a lot of things in our lives bit by bit like riding a bike or learning to read. We take small steps forward until we have mastered the task or gained a new skill. We celebrate these accomplishments. We document them as parents for our children. Even the smallest of children learn that… Continue reading Bit by Bit

ALS · Big Daddy · Faith · Medical

“Still, I rise”

November 14, 2019 mom2manyboysLeave a comment

I woke up in the middle of the night and immediately the sense of panic I live with every day set in.  My chest tightened and I my mind started searching for ways to regain control over my emotions.  Usually, I can focus on my own breathing but lately, I listen to Ben breathing and… Continue reading “Still, I rise”

ALS · Big Daddy · Family · Medical · Muscular Dystrophy

Hope is the only thing…

November 4, 2019November 4, 2019 mom2manyboys5 Comments

Dear Friends and Family: I recently read a quote that said, “hope is the only thing stronger than fear”.  I have written and re-written this blog post atleast a dozen times.  There are a lot of reasons why.  But the truth is that it is a hard post to write.  There have been many times… Continue reading Hope is the only thing…

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