Oh man what a week. Can I just tell you I've never been more happy to see Friday night than I was this past week. Let me back it up a little and fill you in on a few details. You might want to get something to snack on...this might take a bit. Let me… Continue reading Lumps, bumps, and a broken butt?
Nothing compares to having a good friend. Life on this teeter-totter just wouldn't be the same. They pick you up when you are low and sometimes you get to experience the joys of bringing them up, too. It takes a special kind of friend to jump into our pool and not be overwhelmed by the… Continue reading Sending Love to Texas
These two love birds tied the knot in August. COVID-19 meant a much smaller celebration, but it was the perfect weekend filled with family and a lot of love. Shoutout to Jeremy Erickson (www.jrerickson.com) for another amazing video that captured it all perfectly. Welcome to the chaos Sadie...we love you both very much! https://vimeo.com/476926552?fbclid=IwAR34wLHRiI1hD-9b2qP7inP20lfx2MWpHO8wPWu_jR4dwC4NaIF4xtVtRaU
Sometimes life in the Barrus house is like one of those really bad late-night infomercials where you just get comfortable with the thought/experience/moment and suddenly life busts in and announces, "But wait...there's more"! Maybe this is why I don't like roller coasters? Or infomercials? Most of the time I do a pretty good job of… Continue reading But Wait…There’s More!
One of the (many) challenges with Ben's disease progression has been some of the symptoms he experiences that don't fit in to a specific neurological disease diagnosis. Our primary care doctor once summed it up by explaining that doctor's often make a diagnosis from a checklist of symptoms and if those symptoms deviate or don't… Continue reading Layers and Tender Mercies
We do a lot of things in our lives bit by bit like riding a bike or learning to read. We take small steps forward until we have mastered the task or gained a new skill. We celebrate these accomplishments. We document them as parents for our children. Even the smallest of children learn that… Continue reading Bit by Bit
I saw this on Facebook the other day and thought it was appropriate for the times. But on Saturday, I'm pretty sure I started to hear the beating of drums (you know...the ones that signal danger in the movie Jumanji). I had landscapers here finishing up the last of the sod in the backyard, the… Continue reading Welcome to Jumanji…
You know that old saying, "time flies when you are having fun"? Well, it flies regardless. The last six months have been filled with amazing blessings, beautiful memories, and many difficult moments. We have tried to write update posts a million times and the heaviness of it often felt too sad, too heavy. Combine all… Continue reading Time Flies
If I could place all of my worries and concerns on little pieces of paper, I am sure that they would fill a room. I spend a significant portion of my days praying for answers and seeking solutions to the challenges we face. And not just with Ben's medical journey, but with the medical challenges… Continue reading Thank you
I woke up in the middle of the night and immediately the sense of panic I live with every day set in. My chest tightened and I my mind started searching for ways to regain control over my emotions. Usually, I can focus on my own breathing but lately, I listen to Ben breathing and… Continue reading “Still, I rise”